[NB: WORK IN PROGRESS]

Care in modern society is a system of welfare, founded on science, technology and management techniques. Its protagonists are public sector organisations and private businesses, staffed by professionals. This architecture has achieved incredible results. Over time, it has expanded to take on more and more responsibilities.

Over the past 20 years, this system has come under growing strain. The demand for care seems limitless; in OECD countries it now accounts for twice the share of GDP as it did in 1970. Faced with a rising tide of need, systems of care provision can no longer expand. Instead, they malfunction, and often end up denying care to those who most need it.

The main emerging candidate solution is automation. Replace nurses with sensors, clerical services with websites and phone trees. Assist doctors with diagnosing algorithms. The Internet of Things (IoT) promises integrated sensors, data processors and actuators to service our bodies with minimal human intervention. This poses several problems.

  • The IoT is profit-driven and dominated by large corporations. It tends towards a system of "care by artifacts", which is more scalable, although often lacking the warmth of human interaction.
  • These artifacts are proprietary and untransparent.
  • Manufacturers have a business incentive to sell health as a service. This is most profitable if we never heal; staying dependent on paying the subscription fee to remain well.
  • The IoT has major privacy issues. They could lead to a dystopian scenario where providers use big data to deny protection to those who need it most.

We see a second emerging candidate solution: community welfare. It attempts to combine the modern science and technology of state- and private-sector provision with the low overhead and human touch of community provision. 

Since January of 2016 edgeryders has been exploring projects hacking away at different parts of the problem. We are finding a staggering wealth of under-the-radar initiatives, from open source devices for echography to peer-to-peer suicide prevention. From building opensource alternatives to expensive proprietary medical instruments, to decentraling the science and production of essential drugs such as insulin. Many of them involve neither state nor private sector. Some are completely informal. They hunger for peer support and collaboration; we see them forming partnerships as a side effect of meeting on our platform.

We have learned that care is not one well-defined problem, but a constellation of issues undergoing constant redefinition and renegotiation. Any one organisation, no matter how efficient and smart, has no hope of containing it.  

So we are building a  "smart swarm" of many grassroots initiatives of community welfare. The swarm environment encourages initiatives to learn from each other and collaborate, supplying each other with products and services. We ensure mutual learning and adaptation by open knowledge, great documentation and top-notch online-offline community management.

The next step? Building interoperability between them so we go from tiny islands to connected solutions which offer credible alternatives to failing systems before the current ones collapse. We have already made the first cut for a 100 million USD grant to work together. Whether or not it comes through, we are dedicated to making this happen.

LOTE6, the sixth edition of our annual community gathering is dedicated to this goal.

We will bring together a number of existing opencare projects in one place. And build a working, living demo of what they could look like when joined together. We think of it as a pop-up village for OpenCare and invite everyone who cares about the issue to join us in taking on one of the most important challenges of our time.

If nothing else it will be exciting to see what we can achieve when we choose to come together, inspire one another, and help each other. Peer to peer.

LOTE6 in a nutshell:

What? A participant built festival dedicated to bringing together existing opencare projects into working demo of a clinic entirely powered by open source, community driven solutions.

When and where? September 2017, exact location t.b.c. Preparation will place online before the physical gathering.

How to get involved?There are several phases of the project: From brainstorming, requirements engineering all the way to committing patches and setting up the physical space in the SHA campsite. As many of the initiatives are struggling with finances, fundraising to cover travel expenses and cost of materials for those who need it will be another area where we could use help. We will also need help with reaching out to contributors and doing some online community management. Every single contribution is welcome and very much appreciated.

For more information: Come to our weekly online community gatherings here, drop into the shared workspace [url coming soon] or contact natalia@edgeryders.eu

About the weekly community calls

Twice a week we will be working collaboratively on both the LOTE6/OpenCare Pop Up Village, and the actual village we will build in the second half of the year, hopefully together with you. 

We meet on Tuesdays (9 AM CET) and Thursdays (3 PM CET) here. We will dedicate Tuesdays to LOTE6, and Thursdays to community news and the barn raising ideas. You are welcome to join in at any time and discuss, ask, brainstorm, and collectively design them with us. Or tell us what are your needs and ideas, so we could include them in both the event and the actual space. 

The list of topics:

  • program of LOTE6
  • venue, concept, design of the event
  • crowdfunding ideas for LOTE6 and the new space for Edgeryders (The Reef)
  • sketching the fundraising campaign and writing the script for the promotional video
  • scouting for and securing the location for The Reef
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OpenCare Festival | Program

Nadia's picture

[WORK IN PROGRESS: THIS DOCUMENT IS A DRAFT FOR COLLABORATIVELY BUILDING THE PROGRAM. IT IS IN NO WAY COMPLETE OR FINALISED, PLEASE DO NOT PUSH OUT]

Conference

Similar to previous LOTEs we're organising the conference around tracks which represent different perspectives and angles by which to understand and build upon the overall concept of Open Care. To understand why we care about Open Care, read here.

OpenCare Festival | Communities. Innovation. Healthcare. Sept xx-xx, City

Nadia's picture

[WORK IN PROGRESS: THIS DOCUMENT IS A DRAFT FOR COLLABORATIVELY BUILDING THE PROGRAM. IT IS IN NO WAY COMPLETE OR FINALISED, PLEASE DO NOT PUSH OUT]

  • 3 days of talks, debates, workshops and peer coaching
  • exhibition showcasing new technologies, tools and methodologies
  • organised by Edgeryders in partnership with...

Program

Exhibition: OpenCare Popup Village

organising an event within an event

We've considered organizing our Pop-Up Village within an existing event this year (we as Nadia, Noemi, me). After discussing it, the pros seemed obvious: less organizational hurdle and new opportunities to network for us, while we can bring on board a great event, strong community, our work, and resources. And we don't multiply similar events,

OpenCare Popup Village | What, Why and How

Nadia's picture

[WORK IN PROGRESS/ latest update 7 Feb]

About this initiative: A physical space where we bring together opencare projects and build them into a living demo of what they could look like when joined together.

Notes from the Skype call re: PopUp Village/Reef

Present: Natalia, Ana, Alex, Nadia, Noemi. This is a conversation summary and a wiki, so edit as you please.

Nadia's slides - Added a slide around the process/proceedure.

Noemi: Confirm how the PopUp village connects with the reef?

Nadia: The Reef - Difficult political situation. Formal politics not leading to a better future or present

The Reef: Building

Nadia's picture

My presentation during Ada week, which lays out the background reasoning and "master plan" of which lote /pup up village is one part.

No tasks have been added to this group.

organising an event within an event

We've considered organizing our Pop-Up Village within an existing event this year (we as Nadia, Noemi, me). After discussing it, the pros seemed obvious: less organizational hurdle and new opportunities to network for us, while we can bring on board a great event, strong community, our work, and resources. And we don't multiply similar events,

The Reef: Building

Nadia's picture

My presentation during Ada week, which lays out the background reasoning and "master plan" of which lote /pup up village is one part.

OpenCare Festival | Program

Nadia's picture

[WORK IN PROGRESS: THIS DOCUMENT IS A DRAFT FOR COLLABORATIVELY BUILDING THE PROGRAM. IT IS IN NO WAY COMPLETE OR FINALISED, PLEASE DO NOT PUSH OUT]

Conference

Similar to previous LOTEs we're organising the conference around tracks which represent different perspectives and angles by which to understand and build upon the overall concept of Open Care. To understand why we care about Open Care, read here.

OpenCare Festival | Communities. Innovation. Healthcare. Sept xx-xx, City

Nadia's picture

[WORK IN PROGRESS: THIS DOCUMENT IS A DRAFT FOR COLLABORATIVELY BUILDING THE PROGRAM. IT IS IN NO WAY COMPLETE OR FINALISED, PLEASE DO NOT PUSH OUT]

  • 3 days of talks, debates, workshops and peer coaching
  • exhibition showcasing new technologies, tools and methodologies
  • organised by Edgeryders in partnership with...

Program

Exhibition: OpenCare Popup Village

OpenCare Popup Village | What, Why and How

Nadia's picture

[WORK IN PROGRESS/ latest update 7 Feb]

About this initiative: A physical space where we bring together opencare projects and build them into a living demo of what they could look like when joined together.

Notes from the Skype call re: PopUp Village/Reef

Present: Natalia, Ana, Alex, Nadia, Noemi. This is a conversation summary and a wiki, so edit as you please.

Nadia's slides - Added a slide around the process/proceedure.

Noemi: Confirm how the PopUp village connects with the reef?

Nadia: The Reef - Difficult political situation. Formal politics not leading to a better future or present

Upcoming events for this project

Fri, 2017-09-01 11:00
8 attendees, 0 comments

Recent activity in this group

Sat, 11/02/2017 - 16:12
Sat, 11/02/2017 - 10:35

Nadia's picture

Nadia has updated the OpenCare Festival | Registration and Tickets wiki page in the LOTE6 group

Sat, 11/02/2017 - 09:48

Nadia's picture

Nadia has updated the OpenCare Festival | Registration and Tickets wiki page in the LOTE6 group

Sat, 11/02/2017 - 09:43

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