@jimmytidey is in the process of mapping care conversations on twitter and looking at what key organisations and people are talking about. Some of them can be relevant to OpenCare and might be worth inviting into our OPENandChange process. Ideally we would reach out, ask them to join our online calls, interview them and document their story (I can commit to a few stories by mid Sept).
Right now under mapping as far as I understand are topics like:
Open Source and DIY Health (started from open source prosthetics, with OpenBionics at its centre)
International and development health issues.
Makerspaces
Open health software
Mental Health
Carers networks
Jimmy can you let us know if we can already browse through the date, what to look at and generally what would be the way to go forward? Thanks
This is a diagram of the opensource healthcare community as we are tracking it on Twitter at the moment.
It suggests to me that it might be nice to see if we could message @openaps, @openbionics, @enablethefuture or @robdykedotcom and see if we could have a more indepth chat with them? More suggestions to follow…
I’m working on the carers and mental heath sections now. Sorry this took a while, I’ve been cleaning up the data set!
Thanks @jimmytidey, will get in touch. But I’d like to go in and access localnets to see the entire list of accounts - easier than looking up each individually and getting context about them… Please help? Can’t remember if I need a password or not…
@jimmytidey thanks, I could log in on Localnets. I followed your advice and contacted the groups behind the accounts, although DIY and open science is clearly more developed, probably because you mapped it for longer or because the date inputed was just better.
The @blurtalert account is interesting in that they run a blog with interesting personal accounts, so will scan it to see if they reference projects.
The We Communities are definitely interesting - they have p2p sharing and advice giving using twitter chats at fixed times. Curious if they answer.
This is the carers graph, using the carers shortlist on localnets.org.
On the other graphs I’ve presented I’ve used colour to differentiate between sources and not sources, where sources are the accounts which I’m collecting data from. On this one there are such distinct communities I’ve used colour to show which community users belong to. Pink seems to be development health issues around carers, while black is clearly around @hackingwithcare. Blue seems to be UK focused (?). I’m not sure about green.
I thought the following accounts looked particularly interesting. The criteria I’m thinking about are that they are relevant to caring, but also, to some extent, ‘below the radar’.
Thanks Jimmy. I will check these out, and no, no response - maybe I made the mistake of contacting people before holiday season was over, so those messages risk being very de-prioritized. If you have new ideas, shoot.
I’m thinking for carers we might link them directly to interesting posts here rather than invite them to a generic project like OpenandChange and the application. I’ll try to get a proper summary and call online, then point them to it directly.
I did messafe them, but so far people are not responding when emailed / or pinged, so I figured it’s easier to point them to something of direct relevance as an entry point - a good writeup.
Yes we’re doing skype calls but that means someone is willing to engage… or manifests interest. So the question is what would draw people’s interest? Any other ideas?
