OpenCare Kickoff (preliminary)

OpenCare Kick-off Meeting

February, 25th 2016, Brussels

Participants:

Institution

Name

University of Bordeaux (UBx)

Luce Chiodelli

Guy Melançon

Adeline Barre

Olga Ivanova

Edgeryders (ER)

Alberto Cottica

Nadia El-Imam

Noemi Salantiu

Ezio Manzini

John Coates

Sam Muirhead

WeMake (WM)

Costantino Bongiorno

Zoe Romano

Cristina Martellosio

Elisabetta Mori

Alessandro

SCImPULSE Foundation (SF)

Marco Manca

Massimo Mercuri

Stockholm School of Economics (EHFF)

Erik Lakomaa

Tino Sanadaji

Comune di Milano

Rossana Torri

Minutes:

Kick-off meeting agenda:

 

Source: https://edgeryders.eu/en/groups/opencare/february-25th-first-consortium-meeting-a-proposed

Epic goals - Introduction by Alberto (ER)

Review of proposal objectives - as expected by the EC because listed in the DoA and real objectives of the OpenCare project:

High-impact paper on community-driven care & welfare reform

-> wikinomics -> book? -> Influencing the world

+ Spin-off of the project -> OpenCare clinic?

+ Introduction of the hackers’ culture into EU research projects

Learn by doing to deploy collect intelligence to design care services

EC interest in funding the programme -> how to summon collective intelligence for policy-making

-> Provide a scenario on a realistic scale

-> Software stack

Use hackers as a model – why?

1. Low-level of formality between partners

2. Written communication – traces of conversations easy to find and collect

3. Avoid e-mail for transparency and common knowledge (sharing experiences)

4. Skype meetings every 2 weeks – to be confirmed

5. Everything except private information shall be posted on the forum = we have to think about the way we communicate online.

Partners shall use the online forum but also organize it, using tags/subgroups.

Possible to uncheck the groups for which partners receive notifications, if they wish to make it stop.

Tools, procedures: project management - by Luce (UBx)

Detailed information on grant management in the powerpoint presentation held by UBx.

Partners mostly beginners with EU research projects (all partners except UBx + Comune di Milano)

UBx engages to:

  1. Upload resources for project management:

Survival kit to the EC requirements (coming soon – draft to be revised)

+ Time sheets examples

+ Template of a Data Management Plan as provided by H2020

+Gantt with deliverables

  1. Inform partners of important milestones/events (such as when the payment will be done). Information will be provided online on the OpenCare workspace to avoid similar recurrent questions from all partners.
  2. Get in touch with partners to review their plans of using the funds (staff costs, use of other direct costs, and eligibility of expenses) either during the kick-off meeting or through Skype meetings.

Alberto (ER) will take care of the DMP update for submission in June 2016.

EC template posted in the GDocs

EC review: could be organized in October / November in Lisbon (information given by Loretta).

To be organized in Brussels with the PO + expert evaluator of the EC

Ethics – by Marco (SF)

Scimpulse Foundation = Responsible for ethics.

  1. Ethics Advisory Board: one person is appointed, another one to be recruited (work in progress).
  2. Consent form: Questionnaire to de designed and filled in for each participant (to make sure he/she knows the frame of the project) -> draft in progress, inspired by other similar documents. Its submission has to match the launch of the OpenCare platform.

Self-evaluation form - Objectives: keep it as lean and understandable as possible, while keeping it legally viable.

Transparent and dynamic solution that would preserve the community ownership of the conversation/information space.

 

Security of data – by Alberto (ER)

- Data storage: on the ER server located in Germany

- Data secured through https

- Matthias = contact person.

Sensitive data will be put on a specific server - diagram of the process to be sent by Marco.

Previous information on the topic posted by Alberto on the ER online forum:

  • Data stored on ER own server.
  • Server in Germany – best data protection law in Europe.
  • https all around (end-to-end encryption)
  • Data handled by a stack of software which is open-and-free (so the code can, in principle, be audited) and stewarded by substantial development communities (Drupal, MySQL, PHP, Apache and Linux – so the code is audited in actuality). 
  • ER moderators policing the activity feed every day, several times of day.
  • ER explicit terms and conditions - see 
  • One known security bug: https://edgeryders.eu/en/edgeryders-dev/task-1508 (Fix that spammers can add posts, edit wikis as anonymous users)
  • Does not affect credentials, and is easy to fix on a case-by-case basis reverting to the latest legit version of the wiki.

Source: https://edgeryders.eu/en/opencare/task-6025 (Let Marco know about privacy and data protection on Edgeryders)

Presentation of partners

Comune di Milano – by Rossana Torri

Detailed information in the powerpoint presentation held by Comune di Milano.

 

City of Milan aims at developing business models:

  • Labours policies, development policies -> sharing economy to help city's goals, maximize the potential of projects
  • Digital environment, fab labs -> to help empower people

OpenCare within the framework of Welfare di Tutti -> Milan local incentive.

City of Milan is associated with WeMake as local pilots for empowering people -> include group of citizens to help them become protagonists of the project

  • Reconnect society and overcome target-oriented approach by groups of needs
  • Simplify access to services
  • Support collaborative services delivery

Portal by Comune di Milano -> WEMI (Welfare di Milano)

 

City of Milan -> engages local users as a specific task. Active communities already involved and used to collaborate to tell about needs of care -> strongly embedded in specific areas of Milan

Give support to existing networks of care -> towards development of new community-driven social care

Location for implementation: Villa Pallavicini - Culture and social issues center. Italian language courses, bike classes, prepare driving licenses (from users’ demands).

 

How to engage people?

  • Intentionally exclude institutional meetings (round-tables etc.), starting from the habitat and status of the people concerned by the incentive.
  • Clusters of practices to identify and engage people from their current needs.
  • Soft intermediary for other agencies (associations)

January to June 2016 -> engaging 2 to 3 communities for workshops

  • March for exhibition in Milan on sustainable lifestyle to make dissemination of the project
  • April - Social policy

2 co-design sessions with people from these communities to make heterogeneous groups (students, hackers, social workers) to have feedback also from other participants

-> will help select ideas for prototyping

 

Main goals:

  • Public administration: OpenCare = good opportunity to reconnect traditional system with communities in need
  • Test concrete tools
  • Leveraging collective intelligence
  • New public policy rooted in OpenCare approach
  • Help reform local welfare in Milan

 

 

WeMake – by Zoe and Costantino

 

Detailed information in the powerpoint presentation held by WeMake.

WeMake = lab for experimentation and innovation to build a new type of job.

  1. People-oriented
  2. Tech-oriented

 

Aims:

  • Help people learn by themselves (horizontal learning)
  • Open Source at the basis of WeMake (WM rule: something is not really shared if not documented and put online)
  • Collaboration with institutions, schools, young people,
  • Helping companies and people developing prototypes,
  • Bridge between culture(s), technology
  • Social impact

 

Design, prototyping, documenting

Sharing documentation is caring and creating engagement through dissemination

Documentation for WM is allowing people with no tech background to access technology

Graphics, schemes, videos, storytelling, images, etc.

 

Epic goals:

  • One prototype living beyond the project without injection of public funds
  • Playbook (manual on how to do prototypes)
  • Help others contribute
  • Plug-in -> another stakeholder wanting to invest to create conditions to prototypes on a larger scale
  • Consolidate process of knowledge to be able to design and keep technology-designed care services on the market

 

Next activities: warming up local communities, foster online discussions

Codesign sessions in May 2016

 

 

EHFF – by Erik and Tino

 

Detailed information to be provided by EHFF (powerpoint presentation to be shared).

 

Presentation of economic models related to health care industry – increase of health costs / increase of demand from population though apparent better efficiency at treating diseases.

Next consortium meeting 20th-21st of June?

 

Edgeryders – by Nadia and Alberto

 

Mini-website for the project hosted by ER – almost complete, cache version on the ER servers during development.

Implementation soon (Feb/March 2016)

 

Question of language and integration: local communities involved in the project (community around WeMake for ex.) are not necessarily familiar with English. How to integrate them into the community?

 

 

University of Bordeaux – Scientific aspects by Guy

 

  • Cartographic analysis
  • SNA / SSNA - semantic analysis of conversations
  • Maintain OpenCare platform
  • Ethnographic analysis of conversations
  • Using Tulip and Detangler tools
  • Also references to Edgesense conversation network analysis tool developed by ER
  • Masters of Network for LOTE5 : Presentation of Tulip, Detangler and method to be implemented during the OpenCare project

Engaging communities – launch of the OpenCare platform

  • Nadia -> engagement based on motivation of people, social filtering of good ideas according to engagement and development.
  • Ezio -> define open care - legitimation to give advice to people = people who have some knowledge on care.
  • What does define opening care?
  • Higher-level of consciousness about opening care
  • Define the concept of open care
  • Define the use and structure of platform - showing personal stories of what it can be
  • Alessandro -> guidelines to help everyone think on how to design prototypes. Community manifesto?
  • Ezio - try to simply communication - common language?
  • Glossary, discussion rules
  • Take some cases, select some of them which are telling stories the best
  • Accept different interpretations of care - need for 3/4 examples to justify why they are the fixed point on which to have a conversation
  • No formal definition but permits everyone to contribute
  • Select the ones that are the less ambiguous in telling a story
  • ER will get some stories and examples

 

Next meetings

  • Next meeting in Stockholm: foreseen the week of 20-21 June (but difficult for Guy)
  • Meeting in Milan: originally planned in October, should be organized in November (Costantino to confirm)

To-do-list as agreed during the kick-off meeting

Action to be taken

Partner in charge

Deadline

  • Ethics Advisory Board

Scimpulse

February

  • Consent form

Scimpulse

March

  • Collect stories and examples of interpretation of care

Edgeryders

March

  • Launch of the online OpenCare platform

Edgeryders

March

  • Dissemination of the OpenCare project through local workshops

WeMake + Comune di Milano

March

  • Review grant management with all partners according to their specific needs

UBx

March

  • Verify the existence of trademarks on different versions on the project name: Opencare, OpenCare, Op3ncare, Op3nCare, Op3nC@re

UBx

March

  • Upload resources for grant management on the OpenCare workspace

UBx

March

  • Grant access to all partners on the EMDesk platform

UBx

March

  • Confirm asap the date of the next meetings

EHFF and WeMake

March

Upcoming deadlines (see DoA – Annex 1 GA)

Milestone

MS14

WP6

SCImPULSE

Two ethics advisors appointed

Feb 2016

Feb 2016

Delivrable

D61

WP6

SCImPULSE

Consent funnel

March 2016

March 2016

Milestone

MS1

WP1

Edgeryders

Onboarding structure up and running

March 2016

March 2016

Milestone

MS5

WP2

Edgeryders

Conversation-ready online space

March 2016

March 2016

Milestone

MS15

WP6

SCImPULSE

Consent to participation and use of data approved and published

March 2016

March 2016

@LuceChiodelliUB this is what I got if I just brutally copy-paste (and add timeline as image). If you people want to work with it - it is all yours.

Thanks @trythis !